News & Stories
Read our latest news and family stories.
Leia's Story
Katie, Tom, and their children have been supported by Noah’s Ark since their first child, Leia was a baby.
Leia was born in 2019 after what seemed like normal pregnancy.
Katie and Tom then discovered that Leia had barely any amniotic fluid and she was delivered prematurely. Leia seemed perfectly healthy apart from some feeding issues but shortly afterwards, the couple received the devastating news that Leia had severe white matter damage to her brain and serious renal issues and may not have more than a few months to live.
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Family Stories
Dying Matters Week: Riffat’s Story
Riffat is a mum to Saad, aged 11. Saad has Osteopetrosis, (Marble bone disease) a rare genetic condition that causes bones to become very dense and…
5 May 2025
Riffat’s Story
Meet Riffat and her son Saad, aged 11Riffat also had a daughter, Zoha, who sadly died in 2020, aged 22. Saad shares the same condition as his older…
4 March 2025
A’idah's Story
Meet Zeinab and her three children, A’idah, 19, Atifah, 21, and Ammaar, 13. As young people they are all very different, A’idah is lively and bubbly,…
14 February 2025
Ciaran, Ingride and Callum’s Story
“I’ll meet you at Callum’s bench” is something you often hear at The Ark. Although, it’s more than just a place to meet. It’s somewhere to reflect…
28 November 2024
Willow's Story
Meet Elaine and WillowElaine and her daughter, Willow, both feature in our recent From That Moment fundraising campaign film. Willow is six and we…
17 October 2024
Iliana's Story
Meet Natasha and Andy and their three children, Nikolas, Iliana and Gabriella.Iliana has an underlying condition that affects many organs and systems…
16 September 2024
Leia's Story
Meet Katie, her husband Tom and their 3 children, Leia, Robin, and Dylan…Katie, Tom, and their children have been supported by Noah’s Ark since their…
9 August 2024
Andrea, Costel, and Nadia's Story
This children’s hospice week, we're honoured to share Andrea, Costel, and Nadia's story. The film beautifully highlights the vital role Noah's Ark…
21 June 2024
Meet Jannick and his family
Meet Jannick and his family; mum Asabea, sister Shaniya and brother Jevan. Asabea also has two older children, Shekel and Joseph.Jannick has four…
13 June 2024
Transforming Lives: The Power of Eyegaze Technology in Ruby’s Journey
Technology such as Eyegaze can make a profound difference in the lives of children with life-limiting conditions. Many of us take the ability to…
6 March 2024
Meet Roscoe, Gina, Arthur and Ray...
Roscoe, Gina and their 12-year-old twins Ray and Arthur have been supported by Noah’s Ark since the boys were babies. When Ray was born, he suffered…
25 October 2023
Jaida's Story
“Noah’s Ark has been life changing for my family – I don’t know where we’d be without them.”At Noah’s Ark, it is very rare that we tell a child or…
19 June 2023