Every Moment Matters: Our Strategy 2026–2029

Changing what happens next

For over twenty years, we have been dedicated to improving the lives of babies, children and young people with life-limiting or life-threatening conditions, and their families.

Built by and for our community, we proudly serve North Central London and Hertsmere as their local children’s hospice, while expanding our reach through partnerships across North West London.

Every moment matters intro

Our care is always free of charge. We help families be families first – not patients and carers. Whether at home, in the community, or at The Ark in Barnet, we meet families where they are, offering choice, flexibility and compassionate support.

Because when a child is seriously unwell, it affects everyone. That’s why we care for siblings, parents and grandparents too, and continue supporting families for as long as they need us, even after a child has died.

We can’t change a diagnosis, but we can change what happens next.

Every moment matters intro two

Why this strategy matters now

Much has changed since we began offering care in 2006. More children are living with complex conditions. Families’ needs have grown. And support available elsewhere hasn’t kept pace.

Today:

  • Thousands more children could benefit from hospice care.
  • Many families are referred too late.
  • Awareness of children’s hospice services remains low.
  • Access to care is not yet equal across our communities.

Across our catchment area, an estimated 5,725 children may now be eligible for our support, but we are currently reaching only a fraction of these children.

Why this strategy matters

At the same time, families tell us our care is life-changing:

Make a difference

Reducing isolation

Quality of life icon

Improving quality of life

Treatments icon

Supporting treatment

Tour the ark

Easing pressure on the NHS

We must now do more – earlier and for more families.

Our ambition

Over the next three years, we will:

Single child icon

Increase the number of children we support by at least 30%.

Events Whole Family

Reach families earlier, ideally from diagnosis.

Location pin icon

Ensure equitable access, regardless of postcode, background or diagnosis.

No child or family should miss out on support because they didn’t know we were here. 

Our four strategic priorities

1. Reaching more families, earlier

We want every family who could benefit from our care to know about us, and to access support as early as possible.

We will:

  • Build community-based teams in every borough of our catchment area.
  • Develop local community hubs to improve access to our services.
  • Strengthen relationships with community and faith leaders.
  • Increase awareness among healthcare professionals.
  • Promote self-referrals from families.
  • Expand our perinatal and neonatal support.
Reaching more families

2. Delivering excellent care

As demand grows, we will expand our respite and community-based services – often the only support families receive – supporting the government’s shift from hospital to community care.

Excellent care

Our holistic care reflects the World Health Organisation’s 
approach to palliative care, supporting:

Physical wellbeing icon

Physical wellbeing

Volunteers hands

Emotional and psychological needs

Events NA Children

Social and practical challenges

Good for you

Spiritual and existential care

We will:

  • Establish a 24/7 clinical service at The Ark.
  • Expand our in-home respite care.
  • Enhance step-down services from hospital.
  • Reduce unnecessary hospital admissions.
  • Ensure consistent end-of-life and bereavement support.
  • Strengthen support for young people transitioning to adult services.
  • All underpinned by strong, compassionate governance and continuous learning.
Ark high

3. Working in partnership

We cannot do this alone. We will work more closely with:

Layer 1

Hospitals and NHS partners

Volunteers homework

Schools and local authorities

Club

Community and faith groups

Services

Other hospices across London

This means:

  • Earlier referrals.
  • Better coordinated care.
  • Fewer missed opportunities for support.

We will also:

  • Support healthcare professionals to have confident, compassionate conversations.
  • Expand education and training.
  • Collaborate on research to improve care locally and beyond.

Most importantly, we will work with families, not just for them, embedding co-production in everything we do.

Referalls

4. Securing our future

To be there for families tomorrow, we must be strong today. We will invest in:

Our people
Supporting, developing and valuing a diverse and inclusive workforce.

Digital transformation
Improving care through better systems, data, and thoughtful use of technology - always protecting confidentiality and trust.

Sustainability
Embedding environmentally responsible practices across our work.

Financial resilience
Growing income and diversifying funding so we can continue delivering free care to families.

Securing our future

What success looks like

  • More children and families supported.
  • Earlier access to care.
  • Fairer access across all communities.
  • Strong, supported staff and volunteers.
  • A sustainable future for our hospice.
What success looks like

Why this matters

Families tell us our support changes everything.

Together, we can change what happens next. No family should face a serious diagnosis alone.

We create space for:

Fun

Joy

Volunteers games

Play

Volunteers hands

Connection

Support four

Precious memories

For many families, we are their only respite. For some, The Ark is the only place they feel safe outside home or hospital.

We are part of a wider movement – supporting a shift towards more compassionate, community-based care. 
Because every child deserves a life not defined by illness.

Our future, together

For over 20 years, our community has made our work possible.

Now, as we look to the future, we invite you to be part of what comes next. Whether as a supporter, partner, volunteer or team member – together, we can reach more families when they need us most.

Download Our Strategy

Strategy doc mockup

Thank You

Because of you, we can be there to support families. Together, we can help children and families make the most of every day.

Donate Today
Partnerships banner