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Romeo

"When it was first suggested that we could be helped by a ‘hospice’ I thought it would be all doom and gloom and sadness. But it’s so positive and full of life." Read Donna and Romeo's story.


Romeo’s complex heart condition – he was born with a hole between two of his heart’s chambers and his heart was to the right side of his body - meant he had to have open heart surgery at only four days old and another serious operation just weeks later. 

Having survived such a troubling start to life, Romeo spent the first few months of his life at Great Ormond Street Hospital. It was here that he was chosen to be on Paul O’Grady’s Little Heroes on 10 October 2019, which showed the amazing life of this little man.

After eight-and-a-half months, Romeo was allowed to go home from hospital. He’s now had so many blood transfusions that he’s not able to get a new heart but he’s improving with every day.

It was at this point that Donna and Romeo first met Noah’s Ark. Donna broke her leg soon after he was discharged and she realised that she needed to call on help. That’s when she met Maria, a Family Link Worker for Noah’s Ark Children’s Hospice. Maria was able to give Donna and Romeo the practical and emotional support that she needed to get her through those tough first few months at home. As she says: “The support I’ve received has been amazing. When it was first suggested that we could be helped by a ‘hospice’ I thought it would be all doom and gloom and sadness. But it’s so positive and full of life.”

Donna and Romeo have also been introduced to our Specialist Care Team, who give parents some respite in the home, as well as coming along to our Summer Ball which Donna described as ‘the perfect day!’.

Romeo was helped by our Family Link Team. To find out more about what the team does, click here

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